I wish every single one of you could have the chance to meet Jase in person. I know that I wont even be able to come close to describing how amazing he is with my words. Just know that he has SO much personality. He talked my ear off the whole walk to the beach and he’s hysterical! I was truly laughing out loud most of the way. He told me about everything from his love of trucks and trains to some recent underwear struggles… he is NOT shy! I know I caught him on a good day (in between treatments) but he had a ton of energy and a huge smile, the only evidence that he was anything but a happy, healthy 3 year old, was his bald head. He climbed right up on the rocks, sailed (or sunk) his boat and shared some sweet moments with his furry brother Moose. To be honest, he listened better than a lot of toddlers that I see and there was truly no other indication of the ginormous battle that he’s fighting. I’ll share his story below but first, some of my favorites from our session-
Jase’s story told by his Mom (although he is now in phase 3 of treatment which began this past Sunday)-
On 12/19/19 our little train lover Jase, aka Jasie jumping bean, was diagnosed with neuroblastoma. He was originally scheduled to start treatment on Christmas morning. While other kids would be home opening gifts our son would be in Boston Children’s Hospital getting chemo for Christmas, we were devastated. Then, on 12/23/19 Jase underwent emergency brain surgery to stop a bleed caused by one of the tumors in his skull. He made it through a very scary surgery and was shockingly out of ICU on Christmas Eve (less than 24 hrs after surgery). On Christmas morning, we woke up in our hospital room on the 6th floor oncology unit and watched as Jase promptly demolished a chocolate frosted donut… and it was the best gift we could have received. We knew we had an amazing little fighter on our hands, and he has been fighting every day since. He has completed his induction phase of treatment which included 2 rounds of chemotherapy, 2 rounds of combination chemotherapy/immunotherapy, resection surgery to remove the main tumor in his abdomen, and then another combination round of chemotherapy/immunotherapy. He is currently in phase two of treatment and has completed one stem cell transplant and is almost ready to go home from the second. Next he will undergo radiation which will complete phase two. Phase three will consist of an oral chemotherapy and 6 months of immunotherapy. Throughout this rigorous treatment Jase has had many tests and scans to show his progress and we are so grateful to be able to say he is having very good results! His team at Boston Childrens Hospital and The Jimmy Fund Clinic have been beyond amazing and have been very impressed with not only his response to treatment but also how well he has tolerated such an intense treatment plan. He has truly been such “the little engine that could” and has made an extremely difficult time so much easier for us than it could have been! We have also been so blessed to have such amazing support from family, friends and our exceptional community. We are sincerely in awe of how unbelievably kind and generous you have all been. A close friend very appropriately dubbed all of Jase’s supporters the #Jasetrain and there really could not be a more perfect term to describe all the people he has behind him, supporting him, cheering for him, and fighting with him. We have been keeping people updated on Jase’s progress through private Facebook and Instagram accounts but have realized we have an opportunity, and really a responsibility to share Jase’s story to a larger audience and bring awareness to neuroblastoma and all pediatric cancers and how people can help. We have created this page as a platform to raise awareness and hopefully in the future raise funds to help other families dealing with pediatric cancers and to fund research to find cures! Please, jump aboard the #Jasetrain and follow, like and share this page again and again to help us reach these goals! Thank you for your support, we love our #Jasetrain! Danielle, Josh and Jase
Make sure you follow his Facebook page below for updates on his fight. Please feel free to send his family lots of love and positive vibes and share his story to help them raise awareness and help other families dealing with pediatric cancers!
Facebook page- Jase Train